The Politics of Autism

by Bryna Siegel

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Author: Bryna Siegel

Publisher: Oxford University Press

Hardcover:
ISBN 10: 0199360995
ISBN 13: 978-0199360994

The Politics of Autism investigates the truths and fictions of public understanding about autism, questioning apparent realities too sensitive or impolitic to challenge. Is there really more autism? How has the count expanded by diagnosing autism over other conditions? Have scientific methods in autism diagnosis gone hand-in-hand with autism increases? Are mild autism cases really a 'disorder,' rather than personality variant? Can autism be quiescent in childhood but truly first recognizable in adulthood? Why does popular media often portray people with autism as odd geniuses ignoring the kind of autism most have?

Siegel tackles thorny issues and perennial questions: How do we weigh likely treatment gains with treatment costs? Why does our autism education persist in teaching academic subjects some never master? Why do we fail to plan realistically for autistic adulthood? Which parents get caught up in non-mainstream 'treatments' and fear of vaccines?

Readers will see an insider's view of controversies in autism research. Siegel's views, sometimes iconoclastic, always frank and informed, challenge broad unexamined assumptions about our understanding of autism. Each chapter addresses different issues, data, and social policy recommendations. A chapter-by-chapter bibliography with URLs provides both popular media and scientific references.

Review

"Of all of the books written in the last decade about special education policy reform, this represents the best of the best." -- J.D. Neal, CHOICE

"This excellent book is very timely, important, and relevant. It is wonderful to have all of these extremely important issues presented in such a cogent and compelling fashion. Siegel is someone who is never afraid to walk out on that limb and say things that others will not say and which may be unpopular. She speaks the truth, like it or not. This book will anger some people while giving solace to others. This is a book people will definitely talk about. I love it." -- Laura Schreibman, PhD, Distinguished Professor, Emeritus, Department of Psychology, University of California, San Diego

"With 40 years of contributions to the field, Dr. Siegel offers a scientifically informed, pragmatic, long term view on the unmet needs of children and adults with autism and how the politics of autism have failed them. Dr. Siegel suggests reasonable and practical measures to optimize intervention and support for the individual child and his family that we should take seriously. The issues raised in The Politics of Autism extend much beyond autism and should be of interest to a larger audience of families whose children have been affected by different types of disability." -- Eric Fombonne, MD, Oregon Health & Science University, Professor of Psychiatry, Director of Autism Research, Institute on Development & Disability

"The Politics of Autism is worth reading. Determined to "tell it like it is" and make radical arguments about what children need in order to achieve as much independence as possible to parents who prefer to hope against hope, Siegel challenges the contradiction she believes is embedded in autism culture: "cure is much more valued than 'palliation' - though palliation is what most get most of the time." -- Glenn C. Altschuler Ph.D., Psychology Today

"Passionate about vocational education, Siegel argues that we do no favors in trying to teach students skills they cannot learn and that resources must be committed to families in need today and not as efforts to fund research and find cures in the future. VERDICT: While readers may not always agree with Siegel's conclusions, her questions raised are vital for autism professionals to address." --Elizabeth Safford, Library Journal, Starred Review

About the Author

Dr. Bryna Siegel is a developmental psychologist, founder and Executive Director of the Autism Center of Northern California. She is retired as Professor of Child and Adolescent Psychiatry at the University of California, San Francisco. Her career spans 40 years of working on autism diagnosis, education, and treatment. Her interest in the politics of autism grows from years of work on autism diagnosis, autism education, and observing the lives of families living with autism.